Showing posts with label Awareness. Show all posts
Showing posts with label Awareness. Show all posts

Sunday, January 15, 2012

January Thyroid Awareness Month



Thyroid Pictures, Images and Photos
 I was diagnosed with Hypothyroidism about 2 years ago and my husband not to long after. I am tired of what it does to my body and I still don't think i have my medication right.

 Check out this blog Finding My Way

This paragraph will surprise some viewers and enlighten others: . . . 59 million Americans have thyroid problems, and the majority of these thyroid sufferers remain undiagnosed and untreated, in part because patients and their doctors are unaware of the many different risk factors, signs and symptoms of a thyroid condition (http://thyroidawarenessmonth.com).
 Hypothyroidism  - slow, fatigued, fat I have hypothyroidism, the most common thyroid problem. My thyroid gland produces insufficient thyroid hormone. Hypothyroidism causes the metabolism to slow down. Some of the side effects are fatigue, depression, weight gain, hair loss, infertility, low sex drive, memory and concentration problems.
 hyperthyroidism - fast, anxious, thin Men are just as susceptible to thyroid disease.. Hyperthyroidism may lead to anxiety and/or panic attacks, tremors, diarrhea, muscle weakness, eye problems, insomnia, and rapid, debilitating weight loss. This therapy is safer than it sounds; in fact, it is the most commonly used hyperthyroid treatment in the US. Unlike anti-thyroid medications, radioactive iodine is a permanent and more reliable cure for hyperthyroidism. However, you then have to take thyroid hormone replacement therapy, just like someone with hypothyroidism. Some types of hyperthyroidism, like solitary toxic adenoma, requires surgery to remove half of your thyroid gland (known as a lobectomy) with the adenoma. For nearly all other types of hyperthyroidism, including Graves' disease, the surgery is a nearly total thyroidectomy. Learn the symptoms of hyperthyroidism, hypothyroidism, Graves Disease, and the appearance of goiters and nodules so that you can spot them in friends, family and children. Thyroid cancer is, unfortunately, one of the fastest growing cancers in the United States. Visit the website, thyroidawarenessmonth.com.

 Written by Endangered Spaces

1. Thyroid Disease is not "Easy to Diagnose and Easy to Treat" While it's common for doctors to say "Thyroid disease is easy to diagnose and easy to treat," the reality is that diagnosis and treatment are complicated. Many doctors don't recognize thyroid symptoms, so patients receive antidepressants, weight loss drugs, or other treatments, instead of a thyroid test. Once thyroid problems are suspected, some doctors will perform only one test -- the Thyroid Stimulating Hormone (TSH) test -- and then base their diagnosis only on that result. This narrow approach misses patients who otherwise would be diagnosed by a thorough thyroid evaluation, such as one that takes into account clinical examination, review of symptoms, a thorough family and personal history, and other blood work and imaging tests as needed. Finally, some doctors use a cookie-cutter approach to treatment, and believe that only one drug is optimal, and that once blood test levels reach a particular target, the patient is fully treated, even if debilitating symptoms remain. To do: Spell out symptoms and family history, ask for a thorough thyroid evaluation, and be sure that the doctor's treatment goal is resolving symptoms, not just blood test results.
 2. Doctors Can NOT Rule Out Thyroid Disease Just By Looking at a Patient or Feeling The Thyroid Gland Surprisingly in this day and age, there are still practitioners who believe that they can simply look at a patient, or feel his or her neck, and rule out thyroid disease. Looking at the patient, as well as feeling the thyroid gland for enlargement and lumps, are only a small part of a clinical thyroid examination. This exam should also include a blood pressure and pulse check, weight check, evaluation of reflexes, and careful evaluation of clinical thyroid signs, such as loss of outer eyebrow hair, swelling in face and limbs, unusual skin patches and other skin and hair disturbances. The doctor then considers the findings, in addition to blood work and medical history, to make a diagnosis. To do: If a doctor rules out thyroid disease based on looking at a patient, or feeling the thyroid, get another opinion.
3. Millions of Patients are Stuck in the Thyroid Test Limbo Land Many practitioners consider the Thyroid Stimulating Hormone (TSH) test the "gold standard" for diagnosing thyroid disease. Unfortunately, there is a battle in the medical community over how to interpret the results of that test. On one side are the more progressive practitioners who use 0.3 to 3.0 as the normal range, while a group of hard-liners refuse to budge from an older range of 0.5 to 5.0. Despite recommendations by endocrinologists that the newer, narrower 0.3 - 3.0 range is optimal, many labs, doctors and insurers refuse to acknowledge it. It's estimated that some 22 million to 28 million people are considered hypothyroid according to the new, recommended standards, but remain in limbo. To do: Says Shomon, "No one should accept that a thyroid test is 'normal' without finding out the exact numbers, and the normal range the doctor is to define normal. And anyone who falls in the 'limbo' of a TSH level of 3.0 to 5.0 and is told they're normal should get another opinion from a more up-to-date practitioner."
 4. The TSH Test May Not Be Enough to Diagnose Some Patients The TSH test measures one pituitary hormone that responds to thyroid function. It does not, however, test for autoimmune disease, which is the primary cause of thyroid dysfunction. Autoimmune disease may begin to cause thyroid symptoms long before the TSH test become abnormal. Many practitioners do not test for antibodies, nor do they acknowledge research that shows that treating antibody-positive/TSH-normal patients may resolve symptoms, and prevent progression to overt hypothyroidism in some patients. To do: Patients with thyroid symptoms and normal TSH results should ask for antibody testing....especially important for those with a personal or family history of any autoimmune disease.
5. Weight Gain or Weight Loss Failure May be Due to An Undiagnosed Thyroid Condition In addition to being Thyroid Awareness Month, January is also a time when millions of Americans embark on new diet and exercise programs, determined to keep a New Year's resolution to lose weight. Many of those dieters are doomed to fail, however, because their best efforts are being sabotaged by an undiagnosed, untreated thyroid condition. Many people with an underactive thyroid suffer weight gain due to a slowed metabolism, or can't lose weight despite proper diet and exercise. For these people, thyroid diagnosis and treatment can be a life-changing "diet secret." To do: Start a New Year's diet with a thorough thyroid evaluation.
6. An Undiagnosed Thyroid Condition May be the Cause of Infertility, Low Sex Drive, Depression There are women undergoing costly and invasive in vitro fertilization and assisted reproduction -- but have NEVER had a thyroid test. More than half of all women in the U.S. report suffering from low sex drive at various times in their lives -- few have their thyroid tested. A woman who goes to the doctor complaining of depression is more likely to get a prescription for an antidepressant than a blood test. Despite the fact that it's recommended that people with high cholesterol have thyroid evaluation before being prescribed a statin drug, few patients receive such testing. The reality is, despite the fact that thyroid disease is common, many practitioners simply don't know enough about the connections to common symptoms like infertility, menstrual problems, low libido, depression, PMS, high cholesterol, and menopause problems, and so they move ahead with medications, and even costly and invasive treatments, without finding out if a thyroid problem may be the real cause. To do: Thoroughly rule out a thyroid problem before agreeing to fertility treatment or a hysterectomy, and before starting antidepressants, cholesterol-lowering drugs, hormone replacement drugs.
 7. There is More Than One Medication for Hypothyroidism Since many doctors peddle the Synthroid (TM) brand of levothyroxine, manufactured by drug maker Abbott Laboratories, patients often are not told that there are other thyroid hormone drugs that may work as well or better for them, and cost less. For example, less expensive brand-name levothyroxine drugs include Levoxyl and Levothroid. Beyond levothyroxine, Cytomel is a synthetic version of second hormone, T3. Thyrolar contains a combination of synthetic hormones. And Armour Thyroid is an FDA-regulated, prescription natural thyroid drug that has been on the market for more than 100 years, and is often preferred by integrative, complementary and holistic practitioners. Says Mary Shomon: "The best thyroid drug is the one that you and your practictioner decide works best, and safely, for you." To do: If one thyroid drug isn't resolving symptoms, ask the doctor to try other options. If the doctor refuses, get another opinion from a more progressive practitioner.
 8. Radioactive Iodine is Not the Only Option for Graves' Disease/Hyperthyroidism When the thyroid becomes overactive due to Graves' disease or toxic nodules, practitioners in the U.S. most commonly recommend many radioactive iodine (RAI) ablation treatment. The goal of this treatment is to permanently and irreversibly destroy the thyroid, making it underactive, and leaving the patient hypothyroid for life. Outside the U.S., practitioners prefer to start with antithyroid drugs, which slow down the thyroid, and allow for the possibility of a remission. To do: Patients with an overactive thyroid who are being "rushed to RAI" by a practitioner should get a second opinion from a physician who knows how to work with antithyroid drugs.
9. The Thyroid Should Be Tested Before and During Pregnancy Failing to treat thyroid disease during pregnancy increases the risk of miscarriage, stillbirth, premature birth, developmental delays and even mental retardation in the child, so it's essential that a pregnant woman be aware of her thyroid status. Even mild hypothyroidism during early pregnancy can put a baby at risk, so at minimum, women with any family or personal thyroid history who are considering pregnancy, and women having fertility treatments should have thyroid evaluation prior to becoming pregnant. Since more than 80% of hypothyroid women need more thyroid hormone during pregnancy, it's also important that thyroid patients confirm a pregnancy as early as possible, and work with a practitioner to increase the thyroid dosage as needed. To do: Women who are thinking of getting pregnant should have a thyroid evaluation. Women in their first trimester of pregnancy should have the thyroid tested. Women who are hypothyroid need to be knowledgeable, and highly proactive about their thyroid monitoring, treatment and management during pregnancy, and should plan ahead with a practitioner.
10. Doctors Who Rely Solely on Laboratory Tests -- And Fail to Also Consider Symptoms -- Are Not Adequately Treating Thyroid Disease Today's thyroid treatment tends to focus on the test results -- to the exclusion of how patients feel. One prominent endocrinologist even declared that thyroid patients who had "normal" thyroid blood tests after treatment, but who continued to have debilitating symptoms, were likely suffering from mental illness. "This has to change, " says Shomon. "Practicing medicine is a lot more than just reading numbers off a chart. One thing we need to remind doctors is that we are patients -- not lab values!" says Shomon. "When doctors put on blinders, and refuse to consider anything but the TSH test results, a patient is not receiving optimum care, and should think about finding a new practitioner for their thyroid care." Mary Shomon is the nation's leading thyroid patient advocate. She is author of 10 popular books on health, including New York Times best-selling "The Thyroid Diet: Manage Your Metabolism for Lasting Weight Loss," "The Thyroid Hormone Breakthrough: Overcoming Sexual and Hormonal Problems at Every Age," "Living Well With Hypothyroidism: What Your Doctor Doesn't Tell You...That You Need to Know," "Living Well With Graves' Disease and Hyperthyroidism," "Living Well With Autoimmune Disease," and "Living Well With Chronic Fatigue Syndrome and Fibromyalgia." Shomon is founder and editor of a popular thyroid website, http://www.Thyroid-Info.com, and edits an email and print newsletter and magazine for thyroid patients , "Sticking Out Our Necks: Thyroid Report." Since 1997, Shomon has also served as the Guide to Thyroid Disease at About.com, a New York Times Company. More information on Mary Shomon and thyroid disease is online at Thyroid-Info.com and ThyroidAwarenessMonth.com -- two of Shomon's advocacy sites. written by http://www.prweb.com/releases/2007/01/prweb496478.htm

Saturday, September 12, 2009

Prayers for Melanie -- update

The Good news although there is still some prayer concerns. The first doctor who performed the surgery said there was no cancer in the lymph nodes! The second doctor said it was late stage 2 cancer and things chemo will be good. She is bleeding from the surgery and had to have a blood tranfusion. That was the update yesterday.

Also from yesterday Melanie did some walking, laughed at a silly TV show, was in pain but it was intermentant. The bleeding was light but she has continued to bleed and is in tremendous pain so say a prayer for the bleeding and pain to stop and that she might be able to avoid Chemo...

The last update from 11 hours ago says she is still bleeding its lighter but hasn't stopped yet and she is still in pain. There are signs her colon is working so Praise God for that! She's not getting much rest due to the flurry of activity of the goings on in a hospital. She's not accepting vistors or phone calls. I sure hope someone is feeding her daughters who stay with her so they can avoid the cost etc of the hospital food.

Monday, April 13, 2009

Autism Awareness

We've run into a new conflict with James. I have been very Autism "Aware" since Kristin and Ryan came into my life and have had it in my life before them. I started to absorb and learn. Why? I don't know why? My love for learning new things, I read things to understand them instead of turning the ignorant cheek. Slowly more children with PDD, High Functioning Autism or Aspbergers, and even one friend of my sisters who has an 8 year old son who was diagnosed at the age of three with Aspbergers but as he got older he started to develop more severe symptoms that was more signs of classic Autism. I remember one event where Chase was so lost and I felt as frustrated and lost as he did and very helpless. Most of the children in my life with ASD have been boys but one was a girl and she grew up next door to me. Those of you who've known me for the life of Bella's mommy Chat remember the issues I had with my first husband. Have to say I have never seen the light in his eyes like when he was a teacher for Aspbergers. These are the memories I have about Aspbergers.. When James my step son came into my life I was told he MAY have BiPolar. His mother said more so than his father. Soon after Rick and I got married James stopped taking his medications for Bipolar. Yet no symptoms of bipolar persisted through some HELLISH times dealing with two deployments between Rick and Rick's oldest son Alex. James had more break downs than bipolar symptoms. Which made me suspect Aspbergers... I asked his parents about his development and neither parent remembered anything significant. I know James didn't want to be branded with Bipolar but his biological mom never stopped with this and often brought it up. Toward the end of the deployment I knew that Rick and I needed help for James. 21 years old with little to no life skills. What he did know I helped teach him. I taught him how to cope. I pressured him into a job. So I decided all my hard work wasn't going to waste. I was going to sign up for Family therapy. So when Rick rejoined the family. I would already have programs in place to help if there was any PTSD symptoms, and as normal most Soldiers have issues rejoining a family and finding their place in the things that had developed since they were gone. I KNEW this would be a major problem for Rick. Within three appointments the therapist already suspected James of Aspbergers and brought it up to me. I jumped right on her band wagon. It took another session to let James know we were branding him with a new diagnosis and what the new diagnosis meant. Unfortunately James still doesn't like to be branded even with what I see as a BETTER diagnosis. He thinks having Aspbergers means your slower or dumber. I have tried to take this idea out of his head but he won't even talk about Aspbergers outside of therapy. April is Aspberger Awareness month and a lot of people have approached me lately about what Autism is. They are surprised as I am about the lack of knowledge with Autism that they have. At the end of March I was on the search for autism Awareness graphics for actually my graphics site and to make things for Myspace. Rick has to write a paper for school about something that effects him. Medical was one of his options. Since he has a lack of knowledge as do many people around me have about James condition. This really upsets James since he doesn't want to know about autism. He doesn't want to cope with Aspbergers. He doesn't want anything to do with it. This is a foreign concept to me. With every surgery I have had which is ALOT, with every diagnosis I have had I submerge myself in research and learn about it so its not foreign thing someone just put on my back. Its a way to see if the diagnosis really does match me, if the treatment is fitting or if there is something I can do differently, etc. I have done this since I was 12 years old. Can you learn to cope and help yourself with this condition without wanting to deal with the fact you have it in the first place? I haven't found a abundance of knowledge about support for Parents or those who are adults living with Aspbergers. Rick found this awesome workbook I think the worksheets can help James and us out a lot if he was willing. http://www.amazon.com/exec/obidos/search-handle-URL/ref=ntt_athr_dp_Sr_1?%5Fencoding=UTF8&search-type=ss&index=books&field-author=Ellen%20S.%20Heller%20Korin
I am proud of Rick for his willingness to learn and help James cope with his condition. He admittedly wants to learn more especially since we are faced with the chances of the new baby having Autism too.

Friday, April 11, 2008

CHD Awareness/ Posting for a Fellow Military Wife

I don't post much and I don't want this to seem like an advertisement
to "sell" products. Please indulge me if you can and read.

My husband typed this up for people us to pass around..

As some of you know, or don't know, our daughter, Emily, was born
with a Congenital Heart Defect (CHD) that has required several
evasive surgeries and procedures in her short life of two years. As
a result, Angie and I have become involved with an organization
called the Children's Heart Foundation (CHF).

This organization is based out of the Chicago, IL area, with a newly
formed Ohio chapter in Columbus. The purpose of this group is to
raise CHD awareness and fund research aimed at preventing CHDs, as
well as increase the life expectancy of CHD sufferers.


Angie has worked very hard over the last six months to put together a
CHF Awareness Day with the Columbus Crew. This event is scheduled to
take place 23 Aug 08 at the Crew's home game against Real Salt Lake.
The cost of the tickets is $15 each, and CHF gets $3 for every ticket
that we are able to sell.

To order tickets, you can use the link provided. This takes you to
the Crew website. You may also print out the flyer and send it to
Chris Wilson with Crew customer service. 614-447-CREW

This is very important to us. Even if you are not a soccer/football
fan, please consider buying a ticket. If you cannot, or do not, want
to attend, you can have the tickets sent to us and we will use them
to make sure that every "Heart Kid" that wants to go can, regardless
of whether their family can afford it or not.

We would also like to take some to the cardiac units at Cincinnati
and Columbus Children's Hospitals the week of the game to allow
stressed out parents, grandparents, and siblings a chance to get out
of the hospital for a while and enjoy a great event. Having been
there, Angie and I know how important that can be.

Our address is 105 S Highview Rd Middletown, OH 45044.


Please forward this to any friends, family, coworkers, church
members, business owners, sports fans, basically anyone that you
think might be interested, and ask them to do the same. The more
tickets we are able to sell, the bigger the presence we will be
allowed to have at the game. Also, once you arrive, look for our
tent/table on the plaza and come meet some of the kids and show your
support.


As always, please contact me if you have any questions or would like
more information on the game or the organization.
V/R
g

Thanks! Angela Wrather


Ticket Link:

http://columbus.crew.mlsnet.com/t102/tickets/2008/chf/


Organization link:

http://www.childrensheartfoundation.org/




Thanks from Angela, Greg, Jake and Emily